Healthier Stay

A Spoonful of Sugar…

Posted in Newer Posts by Healthier Stay on January 1, 2012
Tags: , , , ,

I’ve been asked to write a theme, “What does Chronically Awesome mean to me?”. The answer is quite simple…Supercalafragilisticexpialidocious! In the film Mary Poppins, Mary changes the lives of 2 very sad children and shows them that there are many wonderful times to be had even when life is rough. She shows them that life is what you make of it. If there is a better analogy to living Chronically Awesomely*, I haven’t found it.

A Spoonful of Sugar helps the medicine go down. Life with chronic illness can seem like a never ending cycle of medicine, doctor’s appointments and hospital visits. Mixing that with pain, frustration and brain fog can cause life to feel like a great black hole sucking your life away. This is when we decide how we will live our lives. It is so easy to get lost in the dark swirling limbo of pain and disease, but it can be just as easy to build a life with joy and purpose once you get used to it. It sounds silly but it’s all about finding the wonder in life again and rewarding yourself for the effort. Eventually life is better and we can deal with the bad effects much easier.

I used to sleep my days away. I couldn’t always tell the days apart. I felt like I was worthless because I couldn’t work and therefore I wasn’t a functional member of society. I had had my life planned out and once I got sick it all seemed to crumble. No more college (4 quarters to graduation) no more job, no more dreams. I had no answer when someone asked me what I did for a living and I stopped going out. I was already depressed and my stagnation only made it worse. I just didn’t care. I was in massive pain and cowed by fear and embarrassment so I let it all control my entire life for years. Seven years to be exact. Those were my dark ages. When I finally realized that my life was passing me by I decided to take some kind of action. I chose not to be a victim any more, I was going to control my destiny. That was when I decided to start writing a book and building a good life. I was here so I’d better make the most of my time. I also decided to start seeing a pain therapist and rein in my life. That was 5 years ago and I have never regretted it. I made the choice to live according to my abilities rather than my disabilities. I’m still sick but I don’t let that be the ruler of my mind these days. I made the decision to change on my own but I needed lots of support from my friends and family too.

Chronically Awesome is a lifestyle and a community. Life is measured one day at a time and choosing a new Lifestyle is measured moment to moment. We need friends that understand to help talk us out of a slump and to help each other through a flare. I have watched this community grow so fast in a year and a half, we have expanded from a few hundred people on the internet to thousands, some people have even started meeting in person. That is fantastic!

When someone asks me what Chronically Awesome is to me, I think of how much my life has changed since I decided that my worth was a price above rubies and that my life would still have meaning. I think about the sweet taste of success with each achievement that surpasses my expectations. Life is hard, healthy or sick, but sometimes you just need to believe that someone is out there with a helpful song and a nice smile. My life isn’t “Practically Perfect in every way” and I can’t fly with a parasol but I can enjoy as much of the experience as possible and save up for a jet pack. To me that’s pretty supercalifragilistiChronicallyAwesome!

*not sure of the grammar

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